One patient leads to another.
Over 24 years ago there was a 12-year-old Nigerian girl who was in desperate need of surgery to correct her congenital heart defect in order to save her life. Unfortunately, she had lived with her defect for too long and her condition was too far gone. Dr. William Novick, as a resident in cardiac surgery at the University of Alabama, learned that if she had received treatment sooner, she could have had the corrective surgery she needed to save her life. Dr. Novick’s mentor, Dr. Albert Pacifico, performed her operation, only to extend her life by a few years.
Dr. Novick, plagued with nightmares of this lost life, was determined to save other children. In the midst of Croatia’s war to break away from Yugoslavia, Dr. Novick accepted an invitation to go to Zagreb to operate on children suffering from congenital heart disease. Here initiated his program of performing pediatric cardiac surgery, providing the skills and training necessary for that country’s doctors to go on and save their own children. This first trip, and the program of saving lives paired with education, led to the creation of the International Children’s Heart Foundation. On that first mission trip to Croatia, Bill operated on 14 children, the first of whom was a 10-year-old boy named Zoran, who had tricuspid valve atresia. The tragedy of the Nigerian girl led to the triumph of this boy receiving his surgery in 1993. Then 6,999 children later, led to a hospital in Tegucigalpa, Honduras in 2014 where a boy named Gabriel was waiting for his surgery.
Gabriel is a 2-year-old boy from Tegucigalpa who, at 4-months-old, was diagnosed with double outlet right ventricle defect and ventricular septal defect. An only child, his mother, Gabriella, is raising him by herself. She works at a local motorcycle shop and their home is 15 minutes away from the hospital. Gabriel loves to play soccer, rather than stay indoors and watch TV. Due to his heart condition, Gabriel was forced to stop activities such as soccer. When Gabriel was 11-months-old, the doctors informed his mother that the treatments he was on were not working. As the surgery Gabriel’s heart required was not available in Honduras, the International Children’s Heart Foundation was his only shot. Gabriel was scheduled to receive treatment during our Babyheart mission in October of 2013, but he arrived sick and therefore, inoperable. His mother continued to hold onto hope and never give up. Babyheart wouldn’t give up either. On our 20th medical mission trip to Honduras, Gabriel received his operation.
On March 5, 2014 at 12:43 local time Gabriel became the 7000th child to receive a life-saving operation at the hands of a Babyheart surgeon. In this case, Dr. Max Sharma, Babyheart volunteer surgeon, operated on Gabriel. Dr. Kathleen Fenton, who has been with ICHF since 2006 heading up the program in Nicaragua, scrubbed in to assist. The nurses in the ICU said Gabriel was very playful, but shy and didn’t like getting his picture taken. They would have to sneak up on him and snap a few quick pictures before he noticed. Just like our other Babyheart patients, he was unique with his own special lively personality that only grew more as he recovered at the expert hands of Babyheart volunteers in the pediatric intensive care unit.
His mother was very grateful and said words cannot express what her heart feels now that her son’s heart is healed. One day, she hopes he will grow up to be an architect and live a healthy life. Gabriel recuperated well, as thousands of children before him did and walked out of the ICU two days later. Now, Gabriel has returned home to continue to recover, grow, and play soccer!
Six more children received operations the day of Gabriel’s operation, bring ICHF’s total operations to #7006. There was actually a running competition as to who would get patient #7000. Because ICHF rarely operates only in one place at one time there were two other missions occurring at the same time as Honduras. There were two programs operating on the other side of the world and both medical teams were communicating with Dr. Novick and ICU Coordinator & Clinical Researcher, Frank Molloy, as to who would obtain the lucky goal of being the medical mission trip that achieved the 7000th pediatric heart surgery.
Special recognition must be paid to ICHF’s collaborating charity in Tegucigalpa, Helping Hands for Honduras, led by Chairman and CEO Ron Roll. Helping Hands for Honduras have been an invaluable part of the Babyheart mission offering in-country logistical support and helping arrangements for patients to come to the hospital for treatment.
There’s a saying: “a great journey begins with a single step”. Dr. William Novick’s and ICHF’s journey started with a single heart, and that first healed heart in Croatia has led to 7000 hearts. 7000 children, 7000 hearts, millions of miles flown by medical volunteers, 33 countries. 368 mission trips. And there are no signs of slowing down as the medical missions continue. According to CHD global statistics there are still 6 million children waiting for heart surgery worldwide. Babyheart is striving to reach them all. ICHF will hopefully soon be celebrating 10,000 healed hearts!
Congratulations to our Babyheart team of volunteers for this accomplishment!
Babyheart team members who served on this mission:
Dr. Max Sharma, Pediatric Cardiac Surgeon
Dr. Kathleen Fenton, Pediatric Cardiac Surgeon, ICHF
Nitasha Joyner, Perfusionist
James O’Leary, MD, Anesthesiologist
Nelson Varas, MD, Anesthesiologist
Mark Gelatt, MD, Cardiologist
Joel Lutterman, MD, Interventional Cardiologist
Enrique Carrion, MD, Intensivist
Barbara Ferdman, MD, Intensivist
Nita Mohanty, MD Intensivist
Stacey Marr, PICU Nurse Practitioner & Educator, ICHF
Lindsay Bailer, Respiratory Therapist
Roy Morris, Biomedical Engineer, ICHF
Andrea Yuel, ICU Nurse & Educator
Maggie Wong, RPT
Laura McKenzie, ICU Nurse
Colette Brodt, ICU Nurse
Justine Mize, ICU Nurse
Sarah Harrison, ICU Nurse
Saad is a 10 year old boy who was born with a hole in his heart that permits his deoxygenated and oxygenated blood to mix, placing immense strain on his heart and preventing his body from receiving much needed oxygen. Babyheart guest blogger and photographer, Kevin Whitcomb, (who is also medically-trained) had the opportunity to meet Saad during our mission to Benghazi, Libya. Here, he recounts his moments with this remarkable child who has overcome so many odds, as he fights for his life due to his heart defect and escape a brutal civil war in Syria.
You’d never guess by looking at him and his ever-present smile, but Saad has had tragedy piled on tragedy in his young life.
Even though he received surgery in Libya, he’s actually a recent refugee from war-torn Syria. He and his family came to Benghazi a little over 6 months ago and have been trying to make a life in a place that’s better than what they left.
On the plus side, Saad was able to get the hole in his heart fixed by our Babyheart team in Benghazi.
On October 30th, the morning of his procedure, Saad was looked over by Babyheart ICU nurse, Libby and local Libyan nurse, Saddam. He wanted to hear his own heart so Saddam hooked him up and then Libby let him take a listen. This was actually good practice for Saad because he wants to be a doctor when he grows up!
Still smiling, Saad was brought into the theater and prepped for surgery. Babyheart scrub nurse, Vicha helped entertain Saad while Babyheart anesthesiologist, Suzana prepared him for surgery.
Saad’s operation was a success. The hole in his heart was patched up and he left the operating room to recover in the ICU. Within hours of his operation, Saad was awake, smiling and playing a game with Babyheart ICU nurse, Libby!
Unfortunately, like so many children in the world, his repair came too late to avoid damaging his heart and now he’ll have to have another operation in the future. The sad truth is that if there was a pediatric cardiac surgical program in Syria years ago, Saad could have had his heart fixed and avoided the additional damage.
ICHF has held 5 missions in Benghazi, Libya and has held missions in 30 countries providing over 6,600 operations. Now, we have started a year long program in Libya to heal hearts and train the local staff in pediatric cardiac care! In a few years, when Saad’s ready for his next surgery, he will be operated on solely by the Libyan surgeons being trained now.
Before leaving the hospital, Saad had a few things he wanted to tell the world and the Babyheart team. To hear what Saad had to say, click on the following video link here.
If you ever wonder if your donations are going to a good cause, just look into Saad’s eyes and know you’re making a difference!
Guest Blogger and Photographer
On October 19th, 2013, ICHF medical volunteers arrived in Tegucigalpa, Honduras with one mission in mind: curing as many children of their congenital heart defects as possible in three-weeks-time.
Grecia Maria Lanza is a six-year-old, beautiful little girl, who received her heart surgery on October 21st. Grecia was diagnosed with a heart defect at the age of two-months-old and stayed in the hospital for one month as doctors informed her parents of her heart murmur. She loves to dance and paint, but would often find herself tired and out of breath. Little Grecia’s heart would also begin beating abnormally rapid, which made her feel very uncomfortable. Doctors advised Grecia’s family to wait until she was four-years-old to see if the hole in her heart would close naturally. Unfortunately, it did not, and for two years she has been waiting for help.
Her mother was concerned that the current state of healthcare in Honduras was not advanced enough to risk having her surgery here. She was also advised that it would cost much more money than they have.
Grecia was the first patient on ICHF’s surgical schedule. She received an ASD repair by ICHF surgeon, Dr. Kathleen Fenton, who repaired her heart with a pericardial patch. This patch is actually taken from within the heart, and is used to close the hole that allows oxygenated and non-oxygenated blood to cross over into different chambers of the heart.
Grecia is shown here after only one day post-surgery. ICHF has honed a Fast Track system that allows children to recover very quickly after their operation. Little Grecia was smiling as she left the ICU, and was discharged the next day.
This pretty little girl will now have the opportunity to live a normal life. Her family is very grateful for our team’s ability to come and perform these types of surgeries in complex environments. Grecia said that she hopes to grow up and become a doctor so that she can help others, similar to how she has been helped. Her mother says that they are very fortunate for the help of ICHF, as there is a lack of highly trained cardiovascular doctors in Honduras.
Thanks to the support of our donors and volunteers, Grecia left the hospital on October 24th.
After a six hour flight from the headquarters of ICHF in Memphis, TN, the plane touches down in the mountainous terrain of Honduras. The remnants of a wrecked flight still lie at the end of the infamous runway of Tegucigalpa’s international airport. The air smells of smoke and citrus, as members of our Babyheart team make their way from the airport to the hotel to rest before the start of another mission in Honduras, at the Hospital de Tórax.
Volunteers from all parts of the world mingle with each other in the lobby, as their anxiousness begins to fade from the calming effect the professionalism and leadership of veteran volunteers. Most ICHF trips adjourn in two weeks, but this trip is unique in that it will be a three-week-long mission in Tegucigalpa.
The highly trained team, led by cardiovascular surgeons, Dr. Kathleen Fenton and Dr. Umar Boston, hope to perform roughly 25 vastly different heart surgeries during our stay in Tegucigalpa. Coordination of the trip is helped by the organization, Manos Ayudando a Honduras, whose leader, Ronald Roll, plays a very critical part in bringing ICHF to Honduras. His family supports the medical volunteers by providing supplies, transportation, daily lunches, and communication for the team. This allows our volunteers to fully focus on our ultimate goal: Providing life saving surgeries to children with congenital heart defects. Also joining us on this mission is Connie Fox, a representative from the Mighty Oakes Foundation, based in St. Louis, Missouri.
As the mission sets course and the inspiring movement of diverse team members working together unfolds, Nurse Coordinator and Educator, Andrea Yuel, outlines the protocols of the mission and explains the procedures and etiquette in the unique environment of Hospital de Tórax, where conditions are less than optimal. Just outside the hospital’s gate lies a thriving, yet impoverished city, where healthcare is decades behind the western world in terms of pediatric cardiac surgery. Fortunately, our highly trained humanitarian medical volunteers are used to extreme conditions. ICHF has completed successful missions, just this year, in countries such as Libya, Ecuador, Dominican Republic, Ukraine, Belarus, and Russia. Literally, we are flying into these areas and performing life-saving operations as efficiently and resourcefully as possible in such little time.
The early morning sun rises, and hundreds of colorful houses glisten in the mountains, as we make our way to the hospital, where families wait through the night, all hoping their children will be seen and put on our surgery schedule for this mission. Unfortunately, only a fraction of them will be seen during this trip. Some children will be put down for immediate surgery. Others will have to wait for the next mission in Honduras, where they will again hope to receive a free life saving surgery from International Children’s Heart Foundation. The children are cycled through evaluations with our pediatrician and cardiologist. Parents line the halls, eagerly hoping their child will be fortunate enough to receive desperately needed surgery.
There is tension in the air as the mission goes into full effect, as we remember that these children have absolutely no other options. Most have traveled with little money for hours to Tegucigalpa, which isn’t an easy task. As ICHF team member, Aspen Mueller says, “While we cannot promise miracles, we can always promise hope.”
By the time International Children’s Heart Foundation departs Tegucigalpa, Honduras, hope will fill the hearts of numerous families that their child will have the chance of living a normal life. ICHF promises hope to families regardless of gender, religion, income, race, or country.
It is a rare moment in life when you get to see so many selfless people come together to help others. ICHF is honored to be an organization that hosts moments like these in 45 missions this year alone. For the past 20 years, ICHF has held missions where experts in pediatric cardiac care donate their time, money and skills to save the lives of children worldwide from congenital heart disease. These experts set aside much deserved time off from their careers to attend our missions and heal the hearts of children in need. Below is an excerpt from our guest blogger Babyheart PICU Nurse Educator and Coordinator, Farzana Shah, who has generously aided our missions for the past year:
“I heard of ICHF through a flyer in the ICU that I work at in Philadelphia…it’s like saying you met your future husband at the bar…not exactly romantic, but that was the seed. I did some research and heard only good things about Babyheart. I saw how many people are helped by this one organization and I was hooked. I had to learn more. So, I completed the online volunteer registration form and scheduled my first trip with ICHF to Najaf, Iraq in September 2012.” (During this mission, with the help of a team of volunteers including Farzana, we healed the hearts of 14 children with CHD’s. Farzana has now volunteered on five of our Babyheart missions).”
During her 4th Babyheart mission (our 14th mission to Guayaquil, Ecuador), Farzana helped save the life of a 5 year old boy named Ricardo. Ricardo suffered from a complex heart defect known as tetralogy of Fallot which is characterized by the combination of four CHD’s:
1. Pulmonary valve stenosis, due to the absence of his pulmonary valve, Ricardo’s pulmonary artery is abnormally narrow impeding blood flow from his right ventricle to his lungs.
2. Ventricular septal defect, resulting from the hole between Ricardo’s two ventricles permitting oxygen-poor blood from the right ventricle to mix with oxygen-rich blood from the left.
3. Right ventricular hypertrophy, characterized by a thickening and enlargement of the muscles of Ricardo’s right ventricles.
4. Overriding aorta, where the main artery exiting his left ventricle appears at the opening of both his left and right ventricles, permitting oxygen-poor blood to flow through the VSD into his aorta.
Because of the severity of Ricardo’s defect, he suffer from “blue” spells where he would turn blue due to the lack of blood permitted to the lungs preventing oxygen to reach his body. Without a corrective operation, the lack of oxygen would not only damage Ricardo’s heart, but also his brain.
Ricardo would need to receive multiple operations. When Ricardo was 2, his heart was in such bad condition, Babyheart Founder Dr. William Novick had to perform a preliminary procedure to prepare him for his future operations. Ricardo received two more corrective procedures this year on July 30th from Babyheart surgeons, Dr. Marcelo Cardarelli and Dr. David Maldonado Gonzalez. He will come back early next year to be evaluated for his next operation which will hopefully be his last.
Ricardo came to visit our team during our 15th mission to Guayaquil this past September. While playing his all-time favorite, Angry Birds, on Farzana’s phone, she recounted her passion for helping these children:
“I can’t say enough about the positive experiences that I have had working with ICHF. With each good and sad situation, you learn to bring the best care possible to these children while adapting to different environments and dealing with the lack of resources, while also ensuring that you are supportive to the family and caring for them as well. Seeing Ricardo come back this mission, and looking like a completely new child; inquisitive, smiling, happy- I could have kissed his cheeks till they turned red and it still wouldn’t have been enough to show how happy I am to know he is doing well.
My experience with ICHF has given me so much growth, both personally and professionally. The ability to be flexible and open to learning has made me a stronger, better nurse. I have worked with some of the most talented people that I would have never had the opportunity to meet if it wasn’t for ICHF and the friendships I have made are incredible.
These trips are like little the wonders of the world…you meet everyone the first Sunday of the trip, some familiar faces, some are first timers, all from different walks of life, and everyone clicks. We find a rhythm and our common goal: to help…help the children, help the families, help our local colleagues learn, help make the lives of those people we come across a little better. When you are asked by someone “how long have you all worked together?” They don’t believe it when you say, “3-4 days”. It’s unexplainable even to me still, the teamwork and dedication that happens in just two weeks with so many variables- a relationship that would take years to build, comes together in just days.
If I could thank each donor and sponsor for making it possible for me and others alike, who have this passion to breakdown social and economic walls in order to provide a child a chance at life; it could only be expressed by looking at Ricardo, and seeing that he has a chance, because of them.”
Lifetime with a Healthy Heart on the Horizon!
Ufuk is a Turkish name that means Horizon and Ufuk was part of ICHF’s inaugural medical mission to Macedonia and was the very fist arterial switch ever done in Macedonia. It was a complicated heart defect that required a difficult surgery that only ICHF’s Dr. Novick could perform. When the team left, Ufuk was still in the ICU with a wound infection but was recovering well and eating. He had his operation at 15 days of age, on March 28th by Dr Novick, and was 3.6kg at the time. He recently returned with his family from his hometown south of Skopje to see the next mission team and be evaluated. He came back to receive his ECHO by our Babyheart team and the local cardiologists. He is just over 6 months old, is a healthy 7.8kg and thriving and better than ever! Ufuk has a new life on the “horizon” with his new heart.
Frank Molly, ICHF ICU Coordinator and Clinical Educator, helped get us the news of Ufuk’s recovery.
Donation Already Saves Lives in Macedonia
Everyone knows the great work of Arkansas Children’s Hospital’s efforts to save lives at home but did you know they are active in saving lives abroad? By making a simple donation of equipment to the International Children’s Heart Foundation they are doing just that. Thanks to the collaboration of 2 biomedical engineers, Kevin Haralson, Director of Clinical Engineering /Biomed at ACH and Roy Morris, biomedical engineer for ICHF.
In order to provide the best technological care for their patients Kevin ordered a new heart-lung bypass machine for the hospital. He now had an older model on his hands that was still fully functional machine but had to be completely discarded. Kevin did not want to see it go to waste and he knew who to call, Roy Morris of ICHF. They both worked in the same field together in Little Rock when Roy was in the private sector. Now Roy works for Babyheart full time and has done an outstanding job of partnering with hospitals around the country to obtain equipment donations for medical missions. In this case he needed a heart lung bypass machine for a medical mission in the East European country of Macedonia. The function and purpose of this equipment is when an ICHF pediatric heart surgeon must stop the heart in order to operate on it. The child’s blood is then diverted and oxygenated via the heart lung bypass machine, operated by a perfusionist, thus keeping the child alive. These machines are expensive and very difficult to come by. Without this equipment the operations could not be performed. Children would have to remain on the waiting list for surgery and many young lives are put at risk, some will die. Then Arkansas Children’s Hospital came through with their donation and the mission could continue. Kevin Haralson facilitated the donation and ensured the equipment was in good working order. Then Roy got it shipped overseas to the operating room in a Skopje, Macedonia clinic, ready for surgery! The donated bypass machine was put to use by professional medical volunteer perfusionist, Swee Huang, and it has helped the mission in Macedonia already operate on, and save the lives of, over 30 children! According to Roy and Kevin, with proper maintenance this machine will last medical missions for at least another 5 years. With ICHF running 3 Babyheart missions per year, operating on 20 children per mission for another five years, this Arkansas Children’s Hospital donation will help save the lives of at least another 300 children!
Babyheart Team Gets to Work Before De-boarding Plane
On a flight to Kharkiv, Ukraine an older man that felt dizzy and disoriented. Then the man fainted and collapsed at the rear of the plane. Luckily, members of an ICHF Babyheart medical team were on board traveling to the next mission in Kharkiv. Dr. Marcelo Cardarelli, PICU Nurse, Roslyn Rivera, and Dr. Herwis quickly got up to help him. As many ICHF medical volunteers will tell you, you must travel well prepared on a medical mission. Roslyn carried a pulse oximetry & wrist blood pressure cuff that they used to check the man’s vitals. They discovered the man apparently had a history of low blood pressure and he appeared to have fainted due to that. He ended up being ok by the time they landed, and refused further medical attention. He walked off the plane himself & didn’t utilize the ambulance they called for him. All in a day’s work for a Babyheart team.
Elizabeth Set to Receive Heart Surgery
Elizabeth Torres’ mother submitted a request for assistance with the International Children’s Heart Foundation earlier this year to help her daughter receive surgery. She is from Ecuador, has been evaluated by a doctor and on a list for surgery but her defect is complicated. Only Dr. Novick has the ability to correct her defect, called an Ebstein Anomaly, a defect of the tricuspid valve which causes a backup of blood into the lungs and insufficient oxygenated bloodflow to the body. Elizabeth is suffering from this heart defect now and it will eventually take her life if we don’t act. Well, Babyheart donors and supporters did act! Via an online crowdfunding campaign on Gofundme.com, they contributed to her heart surgery, which is a fraction of what it would cost here in the United States. Now Dr. William Novick is on his way to a Babyheart mission in Guayaquil to perform the operation scheduled for Monday, Sep. 30th. We are happy for Elizabeth, her mother and family.
Below is an excerpt of a letter from Elizabeth’s mother.
….I know you to be a people of great heart and that have helped restore hope to many children who have all the will to live, I ask with all my heart to help me with my girl and cause I have great suffering and emptiness in my life if I lose her and it is the light that illuminates our lives with strength and love of life has given me the courage each day.
A photographer’s first voyage on ICHF’s first Babyheart medical mission to Skopje, Macedonia
Humanitarian missions are a labor of love, with equal parts of each. They’re also full of hows… How are things going to go, how will the kids do, how is the culture different to what I’m used to? There’s an excitement to not knowing any of these things and a similar excitement as the answer to each question is found through experience.
There are always two aspects to any mission. The external aspects that generate the questions above and the internal aspect of team and patient where there are no questions at all. I KNOW the team is here to fight for the patient, I KNOW the skills of each individual is beyond question, I KNOW the mother and family of each child we see loves their kid with the utmost intensity. I KNOW what’s at stake.
Macedonia, from my perspective, was a beautiful experience. After a grueling flight from Denver I was rewarded by a pretty morning and short drive from the airport to the hotel where the team was staying. No matter where I go, the drive from the airport to the city always sets my impression of a place and this drive was no exception. We passed small parcels of land that had obviously been farmed for a long time, new housing developments and older homes long abandoned. I saw old men fishing in what looked like drainage canals and groups of kids playing basketball at a graffiti covered rec area. I saw in abundance what I call “the sameness” of everywhere I’ve ever been, people going about their day, working hard to support their families. The thing that was different here, was the destruction. There are places you had to look for it but there are small reminders in Skopje of the devastating earthquake in 1963 that set this country back so far. The best example is the train station in Downtown Skopje that was left as it stood the day of the quake, stopped clock and all.
My job as photographer is twofold, to document what the team is doing to show both the world and you as a donor the good works you make possible and to give the kids and their families a voice. It’s a visual voice but that’s enough to start a dialog between them and the viewer. I feel this is the most important aspect of my job, to make that connection between two people who will probably never meet, between two people, one in desperate need for help and one who CAN help. Here in Macedonia there were no shortage of children in need of lifesaving help and fortunately a team here who could provide that help, the Babyheart medical mission team.
On my first day I was introduced to a woman and her son who’s story was tragic. I wish I could post photos of her son but at her request I won’t. She had had 6 miscarriages and her little boy with the sick heart is her last chance at having a child in her life. Even though her son was scared at being poked and prodded and apprehensive about the army of strangers around him, you could tell he was all boy inside. You could also tell the bond he had with his mother was deep and unshakable. Although I can’t go into too much detail about his case, I can tell you his story had a happy ending…
There were 11 cases done on this mission. I’m unique as far as the team goes because I can’t compartmentalize. Each medical team member has a specific role to play, surgeon, scrub, cardiologist, SICU… I am a participant in my own way for the entire case. I’m there in the beginning for the screening, I’m in the OR for the procedure, I wait with the family for their child to come up from surgery, I’m there in the SICU post op when a family member gets to come in and see their baby for the first time and hopefully I get to come back at some point and see a happy healthy kid playing at his home. This breadth of experience gives me a unique position to be able to comment on the miracles that the ICHF team does with your support. Every volunteer and donor should be proud of the lives they touch because saving innocent children is the highest calling a person can answer.
The stories of each of the families on this mission was different and compelling. As the photographer, I have the privilege (sometimes curse) of really getting to know the families. I share their joy when cases go well and their grief when there’s nothing that can be done. I hope through my pictures from this trip, you’re able to share some of that too.
Babyheart photographer and guest blogger
All Pro Cornerback for the Chicago Bears, Charles Tillman, has recently offered his support for congenital heart defect awareness by appearing with Dr. William Novick in a PSA. Shot in March of 2013 the PSA is due to be released later in 2013. ICHF is thankful for such great supporters as Charles Tillman! Read the full story here!
A Flat World, Full Hearts….Facebook, Globalization and Technology come together to Mend Baby’s Hearts
ICHF receives thousands of requests for assistance from parents of children with congenital heart defects all over the world. Babyheart Volunteer OR Nurse, Becca Davenport, had the opportunity to sit with one of these parents and hear her inspirational story of how a group of people from different parts of the world came together to save her child.
Last October, we received a request from Corazones Guerreros Unidos (Heart Warriors United), a Facebook support group for Latin American families of children with congenital heart defects. They had a mother in Ecuador whose two year old daughter was given little to no chance of living because of her multiple heart defects. When Paula was born, she suffered from a small heart murmur. A few months later, Paula’s parents were informed that the heart murmur was even more pronounced and that their baby’s blue-tinged skin color was a sign of low-oxygenated blood. Paula would need an echocardiogram in order to determine her condition. After an agonizing wait, the echocardiogram result’s arrived. Unfortunately, they revealed that Paula suffered from multiple heart defects, several holes in the septum of her heart, and consequently pulmonary hypertension. In the United States these defects are fairly easy to treat if detected by doctors early enough, and subsequently done when the baby is very small. However, in Ecuador there are no resources for children to undergo the necessary cardiac surgery to fix these issues, and thus the doctors treating Paula had nothing positive to tell her parents, only that there was no hope for their daughter.
Paula’s mother was especially distraught to hear that their child’s doctors had nothing to offer them, and it was at this time that she decided to take matters into her own hands. Paula’s parents invested many long hours pouring over the internet, desperate to find someone who could help the young girl. It was a few months after the search that the Facebook support group for Latin American families heard of ICHF. They were astounded to find a non-profit organization that performs life-saving cardiac surgeries all over the world, and even in their country of Ecuador! With the help of the friend from the group as a translator, Paula’s parents were able to communicate with the ICHF, and they were nothing short of persistent, as they knew this might be the only organization able to save their baby’s life.
After reviewing Paula’s medical records, Paula’s family was advised to bring their daughter to the Hospital del Nino Dr. Francisco de Ycaza Bustamante for our next Babyheart mission to Guayaquil, Ecuador. Two months after initially contacting the International Children’s Heart Foundation, Paula and her family undertook the 7 hour trek (via bus) to Guayaquil, Ecuador, where surgeons would be able to fix their baby’s heart. At last, the little girl received her life-saving heart surgery, courtesy of ICHF and the volunteers that make it possible. Surgeons repaired the child’s atrial septal defect and multiple ventricular septal defects (holes in the septum of the inner heart chambers). Two days in the ICU, a few more up on the recovery floor, and Paula was well on her way to healthy new start on life.
Paula’s mother was in tears at the end of the interview. She later said that she was not able to communicate in words the magnitude of the International Children’s Heart Foundation impact on her family’s life. She says that she feels forever indebted to the organization, and the medical professionals who have been able to save her baby’s life. Thank you to the donors and supporters, even if she will never be able to thank them in person.
En español: Un mundo plano, Corazones completo …. Facebook, la globalización y la tecnología se unen para reparar los corazones del bebé
ICHF recibe miles de solicitudes de asistencia de los padres de niños con defectos congénitos del corazón en todo el mundo. Voluntarios Babyheart OR enfermera, Becca Davenport, tuvo la oportunidad de sentarse con uno de estos padres y escuchar su historia inspiradora de cómo un grupo de personas de diferentes partes del mundo se unieron para salvar a su hijo.
En octubre pasado, recibimos una solicitud de Guerreros Corazones Unidos, un grupo de apoyo de Facebook para las familias latinoamericanas de niños con defectos congénitos del corazón. Tenían una madre en Ecuador cuyas dos años mi hija se le dio poca o ninguna posibilidad de vivir a causa de sus múltiples defectos cardiacos. Cuando Paula nació, sufrió de un pequeño soplo en el corazón. Unos meses más tarde, los padres de Paula fueron informados de que el soplo del corazón es aún más pronunciado y que su bebé azul teñido de color de la piel es un signo de baja oxigenada sangre. Paula necesitaría un ecocardiograma para determinar su estado. Después de una angustiosa espera, el resultado ecocardiograma ha llegado. Por desgracia, reveló que Paula sufría de múltiples defectos cardiacos, varios agujeros en el tabique de su corazón y la hipertensión pulmonar en consecuencia. En los Estados Unidos estos defectos son bastante fáciles de tratar si se detecta a tiempo por los médicos, y posteriormente se realiza cuando el bebé es muy pequeño. Sin embargo, en Ecuador no hay recursos para que los niños se someten a la cirugía cardíaca sea necesaria para solucionar estos problemas, por lo que los médicos que tratan a Paula tenía nada positivo que decir a sus padres, sólo que no había esperanza para su hija.
La madre de Paula fue especialmente consternado al saber que los médicos de su hijo no tenía nada que ofrecer, y fue en ese momento que decidió tomar el asunto en sus propias manos. Los padres de Paula invertido muchas horas que vierten sobre el Internet, desesperado por encontrar a alguien que pudiera ayudar a la joven. Fue unos meses después de la búsqueda que el grupo de apoyo de Facebook para las familias latinoamericanas oído hablar de ICHF. Ellos fueron sorprendidos al encontrar una organización sin fines de lucro que lleva a cabo para salvar vidas cirugías cardiacas en todo el mundo, e incluso en su país de Ecuador! Con la ayuda del amigo del grupo como un traductor, los padres de Paula fueron capaces de comunicarse con el ICHF, y eran nada menos persistente, ya que sabían que esto podría ser la única organización capaz de ahorrar la vida de su bebé.
Después de revisar los registros médicos de Paula, la familia de Paula se aconseja llevar a su hija al Hospital del Niño Dr. Francisco de Ycaza Bustamante para nuestra misión Babyheart junto a Guayaquil, Ecuador. Dos meses después de que inicialmente contacto con International Children’s Heart Foundation, Paula y su familia emprendieron la caminata horas 7 (en autobús) a Guayaquil, Ecuador, donde los cirujanos sería capaz de solucionar el corazón de su bebé. Por fin, la niña recibió su vida para salvar la cirugía cardiaca, cortesía de ICHF y los voluntarios que lo hacen posible. Los cirujanos repararon el niño defecto del tabique auricular y múltiples defectos septales ventriculares (agujeros en el septo de las cámaras del corazón interiores). Dos días en la UCI, un poco más arriba de la planta de recuperación y Paula estaba bien en su manera de nuevo comienzo saludable en la vida.
La madre de Paula estaba llorando al final de la entrevista. Más tarde dijo que ella no era capaz de comunicarse con palabras la magnitud del impacto International Children’s Heart Foundation en la vida de su familia. Ella dice que ella se siente siempre en deuda con la organización, y los profesionales médicos que han sido capaces de salvar la vida de su bebé. Gracias a los donantes y simpatizantes, aunque ella nunca será capaz de darles las gracias en persona.
ICHF Babyheart medical missions, new Executive Dir. Terry Carter, and Dr. Christian Gilbert were featured in a recent article in the Memphis Daily News. Click below to read.